Sh*t people say about autism–“it’s just a label”

Dec6bb

I believe that one way to be an advocate for my son, is to talk about his autism in a normal, unexcited way, and to all kinds of people. Without pressing it on them, without embarrassing my son but, when it fits in the conversation, you know, mention it. No big deal.
If people ask questions – great. If they don’t, ok – maybe next time.
But then, there are those people who have it all figured out : With or without Nemo present, several people have now commented that Autism is “just a label”! So what these people are saying is that a century of research, observations and experiences are…just humbug?! So it’s just a fashion; and the assessing specialists have just given some sort of fad label ?   0_o
If anything, I want my son to know that AUTISM IS REAL and AUTISM IS OK.  Those people I spoke to, didn’t mean to actually insult him, or me or the gazillion of people concerned by or researching autism. But people are stupid and will say sh*t about autism, I guess..

Advertisements

6 thoughts on “Sh*t people say about autism–“it’s just a label”

  1. ischemgeek

    I’ve run into the opposite thing more, especially from family. My parents were both big into the labels are harmful stuff, to the point that they refused to take me to a developmental disabilities expert when they realized I’d probably be diagnosed with one. That’s why i still don’t have a diagnosis as an adult.

    Like

    Reply
  2. David Madsen

    We are very open with our son about his autism. He is smart and knows he is different so there’s no point in hiding it. Besides, if we teach him about his challenges, his strengths and weaknesses, we can teach him to work with them and also how to work with others. Anything else would be like trying to hide that fact that he is a boy. Or maybe some people think that is a label, too.

    Like

    Reply
    1. suburp Post author

      and i think that’s the best way =D ..we cannot expect to teach society to overcome a silly ‘stigma’ for things that are part of so many people’s life (same for mental illness), when we delay or transform information to our kids.

      Like

      Reply
  3. PK

    Then there’s the reverse. I know of someone whose family is full of autism, diagnosed and not. I said the “A” word in front of her kids – not about them specifically even, and she shushed me and gave me a look. The kids are on the spectrum, they receive services, but they don’t KNOW anything about themselves. There’s nothing I can do for them. Ugh.

    Like

    Reply
    1. suburp Post author

      hm, that’s an unhealthy situation..but if they get services, I should think they will understand at some point..or maybe will be told. i have come across quite a few parents that wait for some sort of ‘right moment’ before telling their kids about autism. i don’t think that’s right. =(

      Like

      Reply

leave a reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s