We are having an “adventure day” tomorrow. Well, actually, we are just going into the city. Lately, we have made good progress on the acceptable drink when out, but it’s still true that I think carefully about what I put in my bag, where we are going (and where we can make breaks) when we go for a longer outing. It’s important to have adventures though. See new things, get in new situations. Learn to prepare, to say when it’s too much and also to cope when we cannot immediately change it. Or when Mum took the wrong kind of drink. (“red juice” is apple-blackcurrant. still his favourite.)
nb: I made a new FAQ page and changed the header.. – check it out? 😉
Our year continues with more trouble in school. Nemo still has daily support (the new aide is kind and calm) and they have now been willing to trial a few preventive solutions I have put to them (quiet lunches, respite days), but his current reflex to swear and get angry (at least that’s what it looks like) in situations of stress, is taking a bit of a toll on the ‘support team’. On me too, to be quite honest, but since things are rather chill at home in terms of expectations and environment, I simply do not have the Rumpelstielzchen experience on a daily basis, and there is only so much I can do when he is in school. Needless to say, that we do NOT swear like sailors at home, we do not condone it at all and I understand the school has to draw a line…But I still believe that the use of swearwords in moments of distress does not prove he is making the conscious choice to be ‘naughty’ or whatever?! Will be really thankful for any input…
Yeah, not so sure about this day.. The meeting was incredibly awkward, I felt that the suspension was as much meant as a “wake-up call” for me as for Nemo. Which might be necessary for some parents, but I am kinda ‘all over it’ already, at least as much as I personally can be (because, you know : life). In brief, I felt judged and the whole ‘formalisation’ (reports, letters, behaviour contract) made me feel like it has more effect on administrative, and possible legal, follow-up (in case of what ?) than actually being efficient steps towards handling the situation (ie managing anxiety and anger).
Having had some really sad news the night before (re: life..), I really couldn’t say much at all.
But I told Nemo that I loved him, no matter what.
First of all: I am not against medication to help dealing with severe and debilitating mental issues, like depression or bipolar disorder, but also anxiety, PTSD and other stress related illnesses. And these can all be comorbidities of autism. So can ADHD, which I believe is increasingly diagnosed in autistic children. Medication can show good results, temporarily or long-term with all of these conditions. But when this was basically the first and ONLY therapy my paediatrician proposed, on “diagnosis day”, I was just disappointed. There is no ‘autism pill’, right? I think his duty would have been to tell me how to start HELPING my son, what to change at home, at school, to adjust expectations and methods, to help my son thrive! Instead, I went home with the my son’s TRIPLE diagnosis of ASD & ADHD & ODD, a lot of questions…and a recommendation to buy fish oil.