We are having an “adventure day” tomorrow. Well, actually, we are just going into the city. Lately, we have made good progress on the acceptable drink when out, but it’s still true that I think carefully about what I put in my bag, where we are going (and where we can make breaks) when we go for a longer outing. It’s important to have adventures though. See new things, get in new situations. Learn to prepare, to say when it’s too much and also to cope when we cannot immediately change it. Or when Mum took the wrong kind of drink. (“red juice” is apple-blackcurrant. still his favourite.)
nb: I made a new FAQ page and changed the header.. – check it out? 😉
I have to say this first: to the big Aspie/Autism online community that is “wrongplanet.net” – this is NOT about the perception of autistics who might find society so strange and bewildering at times, that it feels to them like they have touched down on another planet. If that is the way you want to describe it, of course I am fine with it (and sometimes feel the same btw..) But every time someone comments on an autistic child with those words, while they might be uttered with endearment and sympathy, it factually sets these children further apart from all the others. Doesn’t matter if it’s only a ‘superficial absence’ (lack of eye contact, different body language) or if they are very distracted (or stressed) by an overflow of stimuli: those kids are still here, with us. Do not exclude them, not even with words.
I had prepared this comic for a while, but hesitated to post it. I think I try not to be too confrontational with real life people… Not only about autism, about anything. I kinda had my share of conflicts in life and know some are just not worth the effort. Like this one? See, my answer to her was “It’s ok. I understand“, something like that. But in reality, I was incredibly hurt. It wasn’t the first car we were passengers in. When the driver actually sets some rules from the start, it usually works. But mum and her kids were completely mute and not exactly welcoming to Nemo. It was a short ride but it WAS uncomfortable. She knew about his autism for long, also worked in education. She “totally” understood ?
Inclusion shouldn’t stop in the classroom. But while – in spite of recent changes that brought an amount of troubles (see earlier comix) – we have made steady progress with the integration of my son in class and his academic performance, I can’t really say that he has made actual friends. This seems to come natural for all the other kids – to a point where the parents find it almost a bit too much… or so I hear. Nothing like the heartbreak about your kid never being invited to all these things that should be part of a normal childhood. (note that we finally had another birthday invitation not long ago, comic coming soon)